Hello. So sorry you’re in such a rough place.
It’ll take time, having a diagnosis is one step, the next is grasping it, as it is for yourself. It’s a different path for each of us and a bumpy one for sure, a rollercoaster I often describe mine as.
I’m totally with Ferret, slightly on a different plain in regards to my method being vaping Cannabis more so than ingesting it. As I read your posts I felt like you need a rest, some down time to recover, to help cope with the stresses and/or just being overly exhausted.
A) just the discovery of the term such as Cataplexy is like a huge door opening, if you’ve been dealing with it unknowingly, yet it all depends on too many circumstances and I won’t begin being thorough there…
B) if you’ve been exerting yourself physically and mentally, beyond say what you may eventually discover as, to be, your own ‘limits and boundaries,’ there’s a good connection of that to amplified, increased, progressing Cataplexy.
In time, with time, things appear clearer, which is of good and bad.
-Some good, being you can arm yourself by learning through the internet, focus on terminology, medical writings and definitions, and interacting, reading other experiences on forums like this. You can improve Narcolepsy symptoms by improving your overall health situation, it goes both ways, and I’m definitely not saying you’ve brought anything upon yourself, not at all.
-Some bad, many things are frustrating repetitively, that being others misunderstandings, confusions and the conflictions out there in even the last places you’d expect it to be, or for that matter where it should be solid but there’s no quality assurance overseeing nor control (that’s my knock on the medical realm in regards to this disease which involves an enormous spectrum).
Get this, statistically (according to people speaking at a Narcolepsy Network conference, yet this is my description of what was said) people who have at some point collapsed regularly from Cataplexy is around or less than 10% of the total, including both types of Narcolepsy, 100% of persons with the disease, around 70% of that 100% have experienced some form of Cataplexy.
The only reason I mention this is to say, there is very limited expertise and knowledge on or of it, Narcolepsy is more known but hardly, obvisouly. It’s very hard to find anyone willing to talk about the depth/s that Cataplexy reaches.
Basically, personally, I must be neurotic AF (in many ways, one could say) about what I eat, how I behave, with whom and when, to what extent I interact and/or participate. To be blunt and honest, I don’t do much socially, I don’t have a career nor relationship, I hang on and cherish what I can, doing what I can manage to do. That may sound worse than it is, but I’m content and comfortable, which is all that I dream of being, hoping to make it work trying to figure the non lifestyle, reality of living type shit out. It took me many years but for me the ‘lifestyle’ part was what I had to figure out, how to possibly balance it, preserve and maintain as best I can; a grounded mindset, behavior and environment are everything.
-Allergies can be hugely heavy and burdening, it’s also easy to overlook or not pick up on for what they are. There’s a lot of stuff we can be allergic or sensitive to, and lot of ways to avoid or minimize being exposed to it.
-Don’t fight nor resist, mentally nor physically, Cataplexy, doing so will amplify and prolong it. Learn to be comfortable with it, if you’ve not already learn to meditate (count and breath, take yourself out of your mind) as it is valuable for much and very much severe Cataplexy. It’s an odd thing to say you’re comfortable with ‘unexpected complete temporary muscle paralysis’ but fearing or being angry at it, gives it a card to play.
The best of luck to you, you’ve come to a good place.