It sucks, but over time, it can get better. Even if you end up pretty much running the gamut of all possible treatments and don’t really have much luck (like me) you will find ways to cope if you don’t give up. I’ve developed a lot of little bizarre sleeping rituals over the years, but they’ve really helped me maximize my “good days” to the point where most of the time I am just normal person’s level of tired all day long, instead of brain melting into a gelatinous puddle of tired all day long. It’s important in life in general, I believe, to live incrementally, more than setting huge fixed goalposts, but it goes doubly so when you have to deal with a chronic illness like this.
My current jam: Anathema - Springfield