Index Support Center Forums Diagnosis Process Covid-19 The Long Haulers Reply To: Covid-19 The Long Haulers

#16196
AvatarSleepy RBD
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As more is being learned about the virus and some of the potential long term effects, I’ve been wondering about some of the same things. For example, could there be a possible increase in the number of NT1 cases identified as a result of this virus due to the triggering of the body’s immune response? I guess time will tell…

@deathrabbit The severity and frequency of my symptoms, especially cataplexy, have definitely increased through the years. Although this goes against some of the things I have read concerning the reports of symptoms of Narcolepsy decreasing with time, I can only speak for my own experience. Could it be possible with each encounter of another virus or serious immunological response to such, our bodies are impacted to an even greater degree than we may know? I think it is something to be considered, but I’m definitely not an epidemiologist, neurologist, or any other medical specialist…

All of this leads me to another question which may be somewhat hypothetical and based on hindsight for you guys, as it is for me. Can any of you pinpoint the particular illness / timeframe which you think may have been the beginning of your symptoms?

For example, one of my earliest childhood memories was when my whole family had been very sick with the flu. I remember friends leaving food at the door for us because my family and I were all so sick. We couldn’t go out and I guess we weren’t willing for our friends to risk coming inside. When I was diagnosed with NT1, began to learn more about it and my family’s history of sleep problems, I started to consider the possibility of this illness from my childhood being the trigger which activated the immune response resulting in the beginning of my journey with narcolepsy. This made sense to me because as far back as I can remember, I have “always” had sleep issues so much so that it was just my normal…

@ferret Thank you for continuing the conversation…I think there remains a lot to be learned…

Stay safe everyone…