- This topic has 4 replies, 3 voices, and was last updated 1 year, 5 months ago by D@G. This post has been viewed 695 times
- June 13, 2019 at 9:49 am #10770shannonmd79Participant
I am looking for some suggestions/guidance on alternative treatment for my 11yr son that has N w/o C, he was diagnosed when he was 5 yrs old and has been on Concerta 36mg taken in the morning and Clonidine .2mg taken at night since the age of 5. The side effects are horrible and have gotten worse in the past 6 months (especially if he misses a dose). We reside in a medical cannabis use state (I am a patient myself so I am very familar) and I would like to know if anyone has any experience with using THC and or CBD rather then pharmaceuticals for treatment in a child. I have been told that the Concerta is the only pharmaceutical available for childern with N w/o C. Looking for some guidance on making the switch.
Thank youJune 13, 2019 at 10:07 am #10772FerretModerator
I would suggest you go to the Non Rx Strategies and read the Cannabis Oil Cheat Sheet. If he had cataplexy, then it would be a no brainer, but I’m rather hesitant to suggest the THC on a developing brain even at a miniscule 1/2 a grain of rice.
I WOULD try the CBD oil but only during the day since it can be quite stimulating… not after 6 pm.
It will be a process for sure but those are heavy duty meds that he’s on and a more natural alternative may be the way to go.
I wish you the very best of luck and success! Please keep us posted.June 13, 2019 at 10:16 am #10775shannonmd79Participant
When you are referring to using a 1/2 a grain of rice are you referring to using the RSO (Rick Simpson oil)?June 13, 2019 at 12:11 pm #10778FerretModerator
Yes. BUT, not made using the solvent that Rick originally used. The solvent is pure grain alcohol and I am very specific about the strain of Cannabis to be used with which I have had the best results.December 6, 2019 at 12:24 am #11758D@GParticipant
You don’t have to look to see concerning stories about Xyrem on here but in my case I was diagnosed at age 10 and started Xyrem within a year or two of that and it was a game changer for me. Again others have had vastly different experiences with it. Also it should be noted Xyrem creates a very large increase in your daily sodium intake (820mg-1600mg depending on dose out of the recommended limit of 2,300mg or ideally 1,500mg for adults) Also also I have Narcolepsy w/cataplexy so its slightly different.
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