This topic contains 59 replies, has 12 voices, and was last updated by Ferret 1 month ago. This post has been viewed 20737 times
- April 24, 2019 at 12:06 pm #9867
I have had to go back to the half CBD and half THC. Couldn’t stand the constant pain any longer. No, the sleep is not as good BUT, with no aches and pains, I am getting things done again.
Truly the best of both worlds would be the pure THC at night and a KNOWN CBD only supplement during the day. The CBD supplements ARE available in Canada and in all 50 States. Getting them into Mexico in a timely manner is damn near impossible at the moment and, trust me, I have tried.
This is the info sent to me by my friend in California of the supplement she is taking for her pain. Two gummies per day on her worst days. She buys from Amazon but you can also order directly from https://www.whitecedar.co/
Attachments:You must be logged in to view attached files.June 15, 2019 at 3:23 pm #10793
FerretModerator@ferretJune 22, 2019 at 12:24 pm #10877
FerretModerator@ferretAugust 26, 2019 at 12:46 pm #11157
So, I finally have an opportunity to use CBD (no THC, das illegal) to help with my cataplexy as I have reached the end of any meds to use for it. I’m going to be allowed to use it under the rule that I find out if it would affect/react to my stimulants. I take concerta 54mg in the morning after I wake up, and I’m allowed two 5mg ritalin tablets as needed during the day. Does anyone know if CBD would mess with them? Ive been looking into it for a while now and I want to try it out, so any help would be greatly appreciated!August 26, 2019 at 2:01 pm #11160
It won’t interfere. I also doubt that it’s going to help cataplexy but ya never know. Please keep us informed.
You must live in a state or country where THC is illegal. May I ask where?August 27, 2019 at 7:44 pm #11169
i live in Indiana, so THC isn’t legal. Most jobs actually require drug screenings to be hired so we have to be very very careful with Hemp products. My cataplexy is anxiety based, and CBD is supposedly a natural anti anxiety kinda thing, as many people I know who use it, use it for that reason. I really do hope that it works though! Thank you for replying so soon too!August 27, 2019 at 11:07 pm #11171
Best of luck! I really hope it works for you. I am patiently awaiting some CBD from hemp here in Mexico. I chose two products from two different companies so I can compare them over time.
Both have third party testing but Nuleaf has their testing results on their website. Not only for concentration of CBD but also tested for fungus, pesticides, heavy metals etc.
Pain and stiffness is a little more intense during the rainy season (currrently happening here) and I want it for that now during the day.
I will experiment a little more after I get back from my trip to Canada in late September.
Be careful of your product choice because there are a lot of charlatans who are jumping on the bandwagon.
Always, always start with a low dose and wait to see what happens over the course of a week. Dosage is by body weight and is posted in this thread.October 7, 2019 at 10:10 am #11353
I am in Canada at the moment and am without my usual oil. I just received this information from Leafly…
They only talk about vaping or smoking which is not ideal for many people. The effects (immediate) and dosage are far more controllable by taking it sublingually as oil just before bed. It was the strain information that is invaluable.
Since I couldn’t even bring my CBD oil nor my THC night oil into Canada, I purchased some CBD oil from a Canadian site and have been using it while here. I’m running a little rough as a result.
We are all unique! It takes a little effort and time to find what works for you. Love being in Canada with family but can hardly wait to get back on an even keel which keeps me at a functional level at home in Mexico.October 13, 2019 at 10:18 am #11384
Okay, here is the update. I just got home after spending two weeks in Canada. The CBD that I ordered to use there was not the best. It SAID it was a very high concentration but I had to increase my dosage drastically to be functional. It took four days of playing with the dosage. The good news is that I didn’t have any break through cataplexy. The bad news is that the sleep wasn’t as good as with the THC oil and I was dreaming a lot more.
Still, I think that it is an option worth trying IF you are in a state where THC is not legal.
My recommendation is to buy from a reputable company with third party testing for concentration, pesticides, heavy metals, fertilizer and fungus.
https://nuleafnaturals.com/ fits those requirements.
Edited to add: The best sleepy strains from Leafly…
https://www.leafly.com/news/strains-products/the-best-cannabis-strains-for-insomniaOctober 31, 2019 at 1:31 pm #11552
Is there anybody out there? I kinda feel like I’m talking to myself on this forum.
Has anybody tried what is written in this thread? I know of one other person who has used the THC oil and it has helped their cataplexy. Unfortunately the information was relayed in a pm.
Come on people. Feed back please. You are absolutely anonymous on here so let’s help others if we can.
I don’t care if you’re in a non legal state. If you have cataplexy and regular meds aren’t working, would you move to a state where Cannabis is legal?November 7, 2019 at 10:03 pm #11597
In the very first post in this thread, I put a link in under the heading “Why Deep Sleep is important to your health”. That was done on mice. Fast forward to 2019 and here are the results on humans. Same thing occurs. The links to the studies are at the bottom of the article.
Simply put: without deep sleep, your brain cannot do its housekeeping and toxins build up. Those toxins include beta amyloid. The build up of beta amyloid is a hallmark of dementia.
I am back on an even keel taking my half a grain of rice worth of THC oil sublingually just before bed. Great sleep.
I continue to take CBD oil in the morning when I wake up and again just before my afternoon nap. No pain.
Best of both worlds. I’m a happy camper as I approach my 68th birthday.November 9, 2019 at 12:20 am #11607
I’m actually getting to the point where I wish this was legal in my state. I’ve gone for years with just using lifestyle to manage my condition. However, I’m getting frustrated with my brain feeling it’s on undervolt 50% of the time. Even with good sleep hygiene, and using all the various tricks I’ve learned over the years, each day is a crapshoot. I heard something about a new medical cannabis being bill drawn up in the legislature in my state (yes, Alabama of all places haha). It could be dicey considering a lot of people in my profession in my general area end up working either directly on indirectly for the feds, where it’s still a bete noir, but if it goes through I’m definitely at the point where I think I’d give it a shot again. Years ago, I experimented in a less than legal capacity, but it didn’t seem to help then. However, smoking medicine is kinda crappy, so it wasn’t done in an ideal or reproducible manner.
My current jam: Anathema - SpringfieldJanuary 11, 2020 at 11:23 pm #11985
Hi! I haven’t read all your links, but I wanted to chime in about CBD oil. I live in a state where TCH is illegal, and was just dx’d narcoleptic with cataplexy a few weeks ago, after 18 years of trying to figure it out.
A couple of years ago I started having pretty severe catapletic episodes as well as severe anxiety triggering them. My acupuncturist had me start taking CBD and the cataplexy nearly entirely went away. I went from several severe episodes a week to 1 a month or less.
I did not realize that THC was regulating my REM sleep, and was already using it before starting the CBD, so I know it was the addition of the CBD and not the THC that was helping me. I look forward to reading all of your links and posting more as I learn. I’m so happy to find this group!January 12, 2020 at 10:06 am #11990
@kitia Excellent! It’s about whatever works for YOU. There is so much that isn’t known about both CBD and THC in the thousands of species that exist that produce them. Perhaps it’s actually neither but some other terpene or flavanoid concentration that’s doing it.
What brand of CBD are you using… and what strain of THC and are you ONLY using the CBD now or both?
Let’s share info so others can benefit.
Edited to add this link: I REALLY want to try Granddaddy Purple and it is one that is offered in the Medical Program in Florida.
https://www.leafly.com/news/cannabis-101/cannabis-entourage-effect-why-thc-and-cbd-only-medicines-arent-g?utm_source=SailThru&utm_medium=email_news&utm_campaign=Newsletters_01152020_Wed&utm_term=%5BTWS%5D%20%26%20%5BMaster%20%2B%20Not%20Dormant%5DJanuary 25, 2020 at 3:22 pm #12114
IF you are going to try Cannabis Oil, PLEASE BE VERY DISCREET OR MOVE TO A STATE WHERE IT’S MEDICALLY LEGAL. You don’t want to end up like this poor guy.
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