- This topic has 9 replies, 6 voices, and was last updated 3 days, 22 hours ago by ThsonBlkg. This post has been viewed 603 times
- January 11, 2019 at 12:54 pm #8782SaschaParticipant
Hi, I’m new to the forum and having issues with my neurologist. He’s not listening to me and it’s obvious he doesn’t trust me. How do I find a new doctor that won’t be like this? His reviews online are good so I’m worried to go by online reviews.January 11, 2019 at 1:52 pm #8784FerretModerator
Tell people where you are located and they will try and help you. It’s a big world.January 11, 2019 at 3:36 pm #8786SaschaParticipant
Cincinnati, OHJanuary 11, 2019 at 7:46 pm #8793NatdocParticipant
513 475 8730
Dr. J. Molano
Univ of CincinnatiJanuary 12, 2019 at 9:20 pm #8806SaschaParticipant
Thank you, Natdoc! I’ll call on Monday.January 15, 2019 at 4:47 am #8828EnginerdParticipant
I used the process of elimination: going from doctor to doctor until I found one with whom I felt comfortable. It took some time, but it was worth it. That was based upon advice from a different specialist; she told me if I felt something wasn’t right with my health, to pursue it until I found a doctor who believed me (…and then my fatigue was eventually diagnosed as narcolepsy).February 20, 2019 at 10:33 am #9147WV_narcolepticParticipant
Narcolepsy is a rare condition and it’s hard to find an experienced doctor. Worse yet, there aren’t many that treat it to begin with. I have seen neurologists, pulnonologists and specialists in sleep medicine.
What I did when I fired my last doc was call SDS Pharmacy which I don’t think does anything but distribute the Super Def Con I controlled substance Xyrem. I asked them if they could tell me which doctors in my area prescribed Xyrem. It was a last resort for me, I hadn’t had any luck finding docs on my own.
To my surprise, they read me off a list of docs. I noticed my doctor was not on that list. I asked why. She said she was only naming docs who had more than 7 patients on Xyrem. I asked how many patients on Xyrem my doc had. He only had one – it was me.
Now I am seeing a sleep specialist with better results.February 20, 2019 at 10:34 am #9149WV_narcolepticParticipant
Duplicate post deletedApril 29, 2021 at 5:28 am #24863LilimaydinParticipant
I agree that it is very difficult to find a good doctor who would specialize in the treatment of this disease. Most doctors give the wrong treatment, which only worsens the state of health. I think you’ll have to change a lot of doctors until you find the right one. My niece is ill and I advised her to keep in touch with the nurse at all times. As far as I know, she uses an online medical card in https://www.iinsight.biz/ software that allows her to make an appointment with a doctor if necessary and ask her questions to the doctor. Tell me, have you called all the clinics in your city?April 29, 2021 at 8:24 am #24866FerretModerator
Yes it is. But if you don’t tell people where you’re located then nobody can help you.
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