Finding a new doctor

Index Support Center Forums Treating Narcolepsy Finding a new doctor

This topic contains 7 replies, has 5 voices, and was last updated by WV_narcoleptic 4 weeks, 1 day ago. This post has been viewed 148 times

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  • #8782

    Sascha
    Participant @sdiotte

    Hi, I’m new to the forum and having issues with my neurologist. He’s not listening to me and it’s obvious he doesn’t trust me. How do I find a new doctor that won’t be like this? His reviews online are good so I’m worried to go by online reviews.

    #8784
    Ferret
    Ferret
    Moderator @ferret

    Tell people where you are located and they will try and help you. It’s a big world.

    #8786

    Sascha
    Participant @sdiotte

    Cincinnati, OH

    #8793

    Natdoc
    Participant @natdoc

    513 475 8730
    Dr. J. Molano
    Univ of Cincinnati

    #8806

    Sascha
    Participant @sdiotte

    Thank you, Natdoc! I’ll call on Monday.

    #8828
    Enginerd
    Enginerd
    Participant @enginerd

    I used the process of elimination: going from doctor to doctor until I found one with whom I felt comfortable. It took some time, but it was worth it. That was based upon advice from a different specialist; she told me if I felt something wasn’t right with my health, to pursue it until I found a doctor who believed me (…and then my fatigue was eventually diagnosed as narcolepsy).

    #9147
    WV_narcoleptic
    WV_narcoleptic
    Participant @wv_narcoleptic

    Narcolepsy is a rare condition and it’s hard to find an experienced doctor. Worse yet, there aren’t many that treat it to begin with. I have seen neurologists, pulnonologists and specialists in sleep medicine.
    What I did when I fired my last doc was call SDS Pharmacy which I don’t think does anything but distribute the Super Def Con I controlled substance Xyrem. I asked them if they could tell me which doctors in my area prescribed Xyrem. It was a last resort for me, I hadn’t had any luck finding docs on my own.
    To my surprise, they read me off a list of docs. I noticed my doctor was not on that list. I asked why. She said she was only naming docs who had more than 7 patients on Xyrem. I asked how many patients on Xyrem my doc had. He only had one – it was me.
    Now I am seeing a sleep specialist with better results.

    #9149
    WV_narcoleptic
    WV_narcoleptic
    Participant @wv_narcoleptic

    Duplicate post deleted

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