Index Support Center Forums Treating Narcolepsy xyrem once nightly.

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  • This topic has 4 replies, 3 voices, and was last updated 3 years, 8 months ago by Chrissie. This post has been viewed 736 times
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  • #1943
    AvatarSleepTime
    Participant

    Hello,
    I have heard there is a new once nightly xyrem, maybe coming soon. Is anyone taking it currently. Is it working, helping with some of the side effects. thx.

    #1946
    TheRabbitKingTheRabbitKing
    Keymaster

    I believe it’s still in blinded trials, but I haven’t really kept up with it. I forget the name of the new drug, so I had trouble finding anything out on google, tho I did notice they are doing a separate trial on a non sodium salt version of Xyrem as well. I would hope they combine the two so you don’t have to choose between the sodium nausea or the single dose.

    My current jam: Anathema - Springfield

    #2043
    AvatarChrissie
    Participant

    When you say sodium nausea are you referring to morning nausea? I get it when I wake up and last about 20 min.

    I want this once nightly xyrem. If I stay over at another persons home, I have to tell them, btw, I usually get up at 4am to pee. lol.

    #2045
    TheRabbitKingTheRabbitKing
    Keymaster

    When I was on it, my nausea would randomly attack. One time I ate 3 slices of pizza at about 6PM when I was feeling fine, then an hour later I literally puked every last bit of it back up. Most epic vomiting session of my life, true story 😀

    My current jam: Anathema - Springfield

    #2047
    AvatarChrissie
    Participant

    Oh wow. That’s terrible.
    My puking happens time to time and its only morning when there is nothing to throw up.

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